Last Saturday we got a call from the ENT in Denver. After reviewing the results of her at home Pulse Ox study, Kaylee is back on oxygen at night.
Of the three nights we did the study for, her best night still had 48 breath holding episodes an hour.
So we are in nightly oxygen to allow her to grow a bit more. Dr. Marsh recommends another sleep study in 6 months.
I'm not convinced it's helping much. We are doing another home pulse ox study this weekend. More on that later :)
Xoxo
The Elworthy's